First of all, I want to tell my friend Cheryl of my utmost joy in hearing that she is in complete remission from amyloidosis following Stem cell transplant this summer! I am absolutely thrilled for you, Cheryl, and for you your family. This Christmas gift is incomparable, and I know many people prayed, pushed and helped you to get there, but of course none more so than yourself. My happiness is complete for you. Enjoy every blessed second of your perfect Christmas gift.
My own stem cell transplant plans continue to develop. I just had 4 weeks of aggressive Decadron treatments (4 days on, 4 days off) and it managed to work some minor miracles of its own. My kidney function has improved about 50%, and my lambda/kappa ratios are very good. I am as about as good as I’ve been since this whole thing started, so I guess that is exactly where I should be a few week before going into transplant. Decadron is a powerful, difficult drug to take, so I am not without side effects. But with a few days before Christmas to go, there is nothing much left to do that would cause a problem if I decided to stay in bed all day. Family and good friends will take care of us this year, and I’m certainly not sweating the details. Things like this always put your life into proper perspective.
So Merry Christmas and Happy New Year to all of my family and friends. Keep checking this blog as I will have much more to write about in the coming weeks. Peace on Earth and healthcare for all! Love, Fay